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First of all - sending lots of prayers your way to fight through this. Sounds like you have a good attitude and an amazing wife to support your journey. Secondly, my husband was diagnosed with ALS several years ago and has had a PEG tube for about 6 years now. If I could offer any advice in that area, it would be NOT to use that crap formula they expect you to use with your PEG. It's SO bad for you!! I know your not planning on using your tube much anyway, but just in case, check out Liquid Hope. Or just eat whatever your family eats and blend it with a really good blender. Lots of hugs for you and your family. Stay strong! #strongwhenweak

Jenn (Neff) Butler, Apr 26 2018 on